Huntington’s Disease Association exists to support people and their families affected by the disease, an hereditary disorder of the central nervous system. It used to be known as Huntington’s Chorea or HC. Huntington’s disease usually develops in adulthood and can cause a very wide range of symptoms. The disease affects both men and women.
Membership of the HDA is open to sufferers, carers, families and anyone who wants to learn more about Huntington’s disease and would like to make a difference. There is no membership subscription fee but all donations are very much appreciated.
Central Care Information, Advice and Support Service
This operates from our registered office in Liverpool and consists of paid staff and volunteers. The office is open from 9.00 am to 5.00 pm weekdays (except bank holidays). Phone Head Office on 0151 331 5444.
Specialist HD Advisory Service
These consist of teams of Specialist HD Advisers who:
- provide information and advice to families
- answer crises calls and liaise with other professional service providers
- promote and develop a full range of local services
- identify suitable respite and residential care facilities
- liaise with local branches and self-help groups
- give talks and organise seminars and training days
- provide speakers for training sessions
- provide workshops for service providers and users such as health, social services, nursing homes, and residential care staff teams
Local branches and groups throughout the UK
These groups provide a local, informal setting for families and individuals to:
- mix socially
- offer support and advice
- share experiences and ideas
- form local links with professionals and other groups in their community
- raise funds
- organise speakers
Events calendar